Community Partners
Asian Americans for Community Involvement - Focusing on the diverse Asian American community, Asian Americans for Community Involvement (AACI) improves the health, mental health, and well-being of individuals and their families by providing an array of human services, and empowers the Asian American community by working collaboratively for equality and social justice.
Asian Law Alliance – Over the past 32 years as a nonprofit corporation, the Asian Law Alliance has helped tens of thousands of people in obtaining decent housing, justice in the immigration process, and access to basic human and legal rights.
Association of Organ Procurement Organizations - The Association of Organ Procurement Organizations (AOPO) is the non-profit organization recognized as the national representative of all fifty-eight federally-designated organ procurement organizations (OPOs) throughout the United States and its territories. AOPO represents and serves OPOs through advocacy, support, and by the development of activities that will maximize the availability of organs and tissues and enhance the quality, effectiveness, and integrity of the donation process.
The Blooming Rose Foundation – The Blooming Rose Foundation was created to give hope to families immediately following diagnosis, fundraise to positively reach a vast array of individuals and offer an online resource for individuals, families, and friends to find up to date research, links to encouraging websites and blogs as well as a way to connect with other families and adults with CF. Blooming Rose Foundation will talk with families about raising a child who is thriving with CF; the positive outlook and breakthrough treatment available now and on the horizon.

The Boomer Esiason Foundation - The Boomer Esiason Foundation is a dynamic partnership of leaders in the medical and business communities joining with a committed core of volunteers to heighten awareness, education and the quality of life for those affected by cystic fibrosis, while providing financial support to research aimed at finding a cure.

Breathe California – Through grassroots education, advocacy and services, Breathe California fights lung disease, advocates for clean air and advances public health.

Breathing Room – Facilitates candid and open communication between adults with Cystic Fibrosis, supports the development of a community of adults with CF and provides education and insight for families, caregivers, and medical professionals who impact our lives.

California Transplant Donor Network – Saves and improves lives through organ and tissue donation for transplantation, concentrating efforts on the recovery and placement of vital organs in northern/central California and northern Nevada.


Chris Klug Foundation – Founded in 2004 by liver transplant recipient and Olympic Medalist snowboarder Chris Klug, the Chris Klug Foundation (CKF) is dedicated to promoting lifesaving donation through Donor Dudes and other programs, and improving the quality of life for donors, donor families, organ transplant candidates and recipients.
Cystic Fibrosis Research, Inc. – A community of families, professionals and volunteers committed to funding Cystic Fibrosis research and improving the quality of life for children and adults with CF.

Cystic Fibrosis Services Pharmacy – At the Cystic Fibrosis Services Pharmacy (CF Services), our mission is to serve the CF population by helping patients and families manage their prescription medication needs. CF Services, a wholly owned subsidiary of the Cystic Fibrosis Foundation, was established in 1988 as a specialty pharmacy and is devoted to provide CF patients with quick, easy, and affordable access to high quality prescription medications, and to assist CF patients in overcoming insurance and financial barriers to obtaining the medications they need. More than just a pharmacy, CF Services is a key advocate to the CF community and in fiscal year 2009 alone, the pharmacy contributed over $4.5 million to patient advocacy, reimbursement support, clinical trials, patient assistance, patient education, North American Cystic Fibrosis Conference (NACFC), and intercompany support.
Cystic Fibrosis Worldwide – Cystic Fibrosis Worldwide (CFW) is dedicated to improving quality of life and life expectancy for persons living with cystic fibrosis globally. CFWW reaches out to its 52 member countries by working to help develop effective cystic fibrosis treatment and care.

Cystic Life – CysticLife (CL) is an organization that works to positively transform the lives of the cystic fibrosis community by providing life-improving resources, community support, increasing awareness, and raising funds. CysticLife developed and operates www.CysticLife.org, which has become the social network for the CF community. This positive, uplifting Web site is a central location for the community to share tips, questions, ideas, experiences and encouragement. Members have the ability to maintain a profile, post blogs, ask and answer questions, directly contact one another, and search others within the community by location, relation to CF, age and gender.

Donate Life America – Assists in mobilizing the transplant community to educate the American public on the need for organ, eye and tissue donation and motivating the public to make an actionable donor designation.

Donate Life California – A nonprofit Organ and Tissue Donor Registry dedicated to saving the lives of thousands of Californians awaiting life-saving transplants.

Donate Life Hollywood – A film festival celebrating the entertainment industry’s inspiring and accurate organ and tissue donation storylines.
Donate Life South Carolina – Donate Life South Carolina is the organization whose mission is to promote organ and tissue donation for transplantation and provides temporary patient assistance for South Carolina transplant recipients. Donate Life South Carolina also maintains the South Carolina Donor Registry.
The Elizabeth Nash Foundation – Honors and perpetuates Liz Nash’s lifelong example of giving and to continue her fight against Cystic Fibrosis by making focused investments in CF research and scholarships for individuals with CF.

Genetic Alliance – Genetic Alliance is the world’s leading nonprofit advocacy organization committed to transforming health through genetics. We promote an environment of openness centered on the health of individuals, families, and communities.

Japanese American Bar Association – The Japanese American Bar Association (”JABA”) was founded over 30 years ago in Los Angeles, California. As such, it is one of the nation’s oldest Asian American bar associations. JABA’s membership includes judges, professors, law students, and attorneys from all backgrounds. JABA provides a forum for members of the legal profession with interest in and ties to the Japanese American community to discuss issues, network, organize, and serve the community.

Japan Transplant Recipients Organization – Serving the Japanese transplant community.
Japan Cystic Fibrosis Network – Established in April 2001, Japan Cystic Fibrosis Network is a community to support CF patients and families in Japan. Because there are only 20 to 30 CF patients in Japan, it had been difficult to receive information about the disease and get to know each other. Through information exchange and communication the community aims to achieve higher quality of lives and treatment for CF families and patients. We look forward to having more CF patients and families join us as well as obtaining latest information from the medical field.
LifePoint – LifePoint is the designated Organ Procurement Organization (OPO) for organ recovery services in South Carolina. LifePoint actively provides organ, tissue and ocular donor services to 62 hospitals throughout the state. LifePoint also helps support and educate families at an emotionally devastating time, so they can make well-informed decisions about organ and tissue donation.
The Lung Transplant Foundation - The Lung Transplant Foundation (LTF) is a nonprofit organization whose mission is to promote and advance research in order to improve long-term outcomes among lung transplant recipients.
Miracles for Life - A non-profit dedicated to inspiring teens and children recovering from life-saving tissue and organ transplants to be their greater selves by offering them an outdoor educational experience that revitalizes their heart, their minds and their spirit.

Oakland Fukuoka Sister City Association – The Oakland Fukuoka Sister City Association helps to foster and promote cultural awareness, understanding, and friendship between the people and cities of Oakland, California and Fukuoka, Japan.
One Legacy – The nonprofit, federally designated transplant donor network serving 18 million people in seven Southern California counties.
The Rock CF Foundation- The Rock CF Foundation is a 501(c)3 nonprofit corporation. Founded and led by Emily Schaller, the Rock CF Foundation is dedicated to increasing the quality of life for people with Cystic Fibrosis. With the help of a core group of volunteers, the Foundation utilizes the arts, entertainment, fashion and fitness to support research initiatives and heighten public awareness in the fight against cystic fibrosis.
Second Wind Lung Transplant Association, Inc. – Second Wind Lung Transplant Association, Inc. was formed in 1995 by a small group of people who wanted to provide information about lung transplantation to others. Today, Second Wind is an international organization with over 400 members scattered throughout the United States and in Australia, South Africa, the United Kingdom, and Germany.
Transplant Buddies – Established in 1999, the TransplantBuddies site provides information about the transplant process, resources covering drugs and side effects, and daily discussions about living life as a transplant patient. The site also includes members Photos, Life stories while covering experiences of both transplant recipients and donors.

Transplant Recipients International Organization - TRIO is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.

United Network for Organ Sharing (UNOS) – A non-profit scientific and educational organization that administers the United States’ only Organ Procurement and Transplantation Network (OPTN), and advances organ availability and transplantation by uniting and supporting our communities for the benefit of patients through education, technology, and policy development.

The United States Adults Cystic Fibrosis Association, Inc. - An independent, non-profit organization that provides a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it and to provide a forum for CF adults to communicate to each other.
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