Live Life Blog
- Wednesday, 29 April 2009 Jenny Davison Posted by rim50@aol.com “CF is a part of who I am but it does not define me” I am 40 years old and have Cystic Fibrosis. I am the youngest of nine children, three of which had CF. Growing up in a big family, there was no time to feel sorry for one single person, so I was treated like everyone else. Which in retrospect I believe helped build my strength and character. I have always been very independent and a hard worker. After High School, I attended the Fashion Institute of Technology in Manhattan. I received a degree in Textiles Development and Marketing and worked for a short time in the Fashion Industry. I quickly realized my true desire was to help people, and returned to school to become a Registered Nurse. I was able to maintain a career in Nursing for over 10 years, working in the Pediatric ICU and the Recovery Room, before I had to stop working. The decision to stop working, although very difficult, was the right choice for me. Family has always been very important to me. I met my husband at a very young age and the decision to marry was an easy one. The decision to start a family was obviously much more difficult. We decided that if Tim was a carrier, we would not have any children. But, he is not, so we went for it. Luckily at the time I was healthy enough to sustain a pregnancy for nine months and she was born without any complications and is now a healthy 11 year old girl! Having my daughter, Dara, was for me, the best decision I ever made, she has brought so much joy to our lives! I recommend to all people with CF to get out there and live your life without putting any restrictions on yourself. Being active is the key to a good quality of life. I have always enjoyed skiing, swimming, riding my bike, whatever will take me outdoors and allow me to feel alive!! Just because you have CF doesn’t mean you have to stop living your life. I have always felt that I was going to do what everyone else does; I just have to work a little harder at it!! Learn More About Jenny… What is your favorite holiday? Christmas Favorite food? Ice cream and pizza Favorite movie? My Cousin Vinnie Do you have a role model? My mother Favorite color? Orange What is your poudest moment? Getting married and giving brith to my child What is your dream vacation? Australia
- Tuesday, 28 April 2009 Tiffany Christensen Posted by rim50@aol.com “It’s not how many breaths you take but the moments that take your breath away” At 6 months of age, I was diagnosed with cystic fibrosis. At 12, I had my first in-hospital stay and began physically...
- Thursday, 23 April 2009 Amy Purdy Posted by rim50@aol.com “The past is history, the future is a mystery, but today is a gift-that’s why they call it “the present’” My whole life I have always considered myself a caring person. The decision to become a...
- Thursday, 23 April 2009 Laura Tillman Posted by rim50@aol.com “The Essence of Compassion: Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and wrong… because sometime in your life you will have been all...
- Tuesday, 10 March 2009 CFW Programs: Education Program Posted by Cystic Fibrosis Worldwide ...
- Tuesday, 10 March 2009 CFW Programs: Developing Clinical Care Posted by Cystic Fibrosis Worldwide ...
- Thursday, 26 February 2009 8th Polish CF week – Rare Disease Day February 2009 Posted by Cystic Fibrosis Worldwide ...
- Thursday, 26 February 2009 CF Europe annual meetings 8 – 9 June 2009, Paris Posted by Cystic Fibrosis Worldwide ...
- Wednesday, 25 February 2009 Translation (Italian): Salto con il trampolino elastico Posted by Cystic Fibrosis Worldwide Salto con il trampolino elastico: un trattamento divertente ed efficace per i pazienti affetti da fibrosi cistica. Translated by Angelica Perrini....
-
Thursday, 05 February 2009
Ready to Exhale
Posted by CEO
From the Desk of Linda Civitello-Joy, CEO
Breathe California,
Golden Gate Public Health Partnership
Ready to Exhale
My personal mission to keep Breathe California strongAdd commentsRead more