Day 28, awaiting the call for Anna’s double lung transplant.Cupcakes are a treat. When they are done right they are a very pleasurable treat. Tiffane’s Cupcakes in downtown Livermore are really, really good and any fine dinner or gathering of people wo…

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Syndicated From: Run, Sickboy, Run – Cystic Fibrosis and Exercise | Original Permalink

Here’s something I started a couple of weeks ago on RSBR, cause as we all know, the weekends are slow around here. I call it "What’s in a Google?".…

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Syndicated From: Cystic Fibrosis Fatboy | Original Permalink

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Syndicated From: The Unknown Cystic | Original Permalink

Do you feel lucky, punk?

[adult language]

I just want cystic fibrosis gone, exorcised from my body like an evil spirit, where it would hang in the air and I’d shoot it with the most powerful handgun in…

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A delicate liver transplant procedure set up to save the life of one brother resulted in ending the life of another brother. Now the brother who received the transplant is back home.

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Syndicated From: Run, Sickboy, Run – Cystic Fibrosis and Exercise | Original Permalink

I recently discovered this website and I must say, I CRACK UP, every time I go through it. I could do without the language, but this guy is seriously…

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Syndicated From: Cystic Fibrosis Fatboy | Original Permalink

I’ve never really talked about going to the Adult Cystic Fibrosis Clinic at Tampa General Hospital, so here is Part 1 of my clinic visits. Growing up in Northwest Ohio, my home clinic was…

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Syndicated From: The Unknown Cystic | Original Permalink

I just read Dr. Nanos’s new post at http://pleasepassthesalt.tumblr.com/post/984144678/the-perfect-day.

Awesome. In fact, so awesome, I’m stealing the idea for one of my own.

The Perfect Day

If I woke up tomorrow and didn’t have cystic fibrosis, I…

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Cells that selectively suppress immune response in the liver of mice could be used to create “immune-tolerant” organs

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Syndicated From: Run, Sickboy, Run – Cystic Fibrosis and Exercise | Original Permalink

I’m doing my own Flash Me Friday today as our host is still having some computer issues These are a couple of pictures of the condo I lived in…

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