Syndicated From: Cystic Fibrosis Fatboy | Original Permalink

You know that you have issues if your clinic, PCP office, and 3 pharmacies are on your speed-dial on your cell phone. Personally, my iPhone has the following: my PCP office my clinic 800…

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Syndicated From: Cystic Fibrosis Fatboy | Original Permalink

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Day 41, awaiting the call for Anna’s double lung transplant.How do you recharge your batteries? Everybody needs a way to do this. If you have not yet figured it out then you are not living with balance. We need to be active and engaged, working hard fo…

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Syndicated From: Run, Sickboy, Run – Cystic Fibrosis and Exercise | Original Permalink

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Syndicated From: Cystic Fibrosis Fatboy | Original Permalink

We were stressing over traveling up to Ohio this weekend with all of my medicine and medical supplies that included my $11,000 Vest and 4 days of Cayston and Pulmozyme, along with all of…

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Syndicated From: The Unknown Cystic | Original Permalink

This is what hell looks like for your gut

After 34 days of stomach aches and diarrhea, and heartburn that ate away at my esophagus like an alien ready to rip from my chest and…

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The Supreme Council of Health (SCH) yesterday announced the launch of the national campaign to raise awareness of organ donation, under the slogan “Together We Plant Hope”, in co-operation with the Hamad Medical Corporation.

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Syndicated From: Run, Sickboy, Run – Cystic Fibrosis and Exercise | Original Permalink

This week’s addition of Flash Me Friday call for pictures of our "bonus room". We actually were really fortunate to pick up a pretty sweet bonus room in our…

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Syndicated From: Cystic Fibrosis Fatboy | Original Permalink

It sure does take a lot of work to pack for a plane trip vs. a road trip. We had to check the regulations because they seem to change every 3-6 months as we…

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Syndicated From: The Unknown Cystic | Original Permalink

Dressed in a suit he wore two times prior to this glorious day, once at a funeral and once at his cousin’s wedding, your new manager delivers the line like an actor with years…

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