Syndicated From: Run, Sickboy, Run – Cystic Fibrosis and Exercise | Original Permalink

My mom has an eye for decorating. My parents’ house looks like something straight out of a decorating magazine. My mom has this unbelievable ability to find the most…

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Syndicated From: Cystic Fibrosis Fatboy | Original Permalink

This was by request from Beautiful after watching a Twitter conversation I was having with another CFer about our ENT visits. This conversation happened to be going on with a seemingly “cute and regular”…

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For every person saved by an organ transplant, there is an organ donor. And in most cases, the donor has died.

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Syndicated From: Run, Sickboy, Run – Cystic Fibrosis and Exercise | Original Permalink

‘IMPROVING ACCESS TO CLINICAL TRIALS ACT’ PASSES U.S. SENATE IN VICTORY FOR CF ADVOCATESThe U.S. Senate last night passed the "Improving Access to Clinical Trials Act" (I-ACT), a bipartisan…

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Syndicated From: Cystic Fibrosis Fatboy | Original Permalink

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BOSTON – State Representative Katherine Clark (D-Melrose), State Senator Thomas McGee (D-Lynn) and State Senator Richard Tisei (R-Wakefield) are pleased to announce that Governor Deval Patrick signed Laura’s Law, An Act Establishing an Organ and Ti…

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Syndicated From: Run, Sickboy, Run – Cystic Fibrosis and Exercise | Original Permalink

Here’s something I started a couple of weeks ago on RSBR, cause as we all know, the weekends are slow around here. I call it "What’s in a Google?".…

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Syndicated From: Cystic Fibrosis Fatboy | Original Permalink

He wants it back, really badly. Even Megace isn’t helping much because it mainly helps me not feel full while I’m eating, but the problem is that I haven’t even been hungry for quite…

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Syndicated From: Cystic Fibrosis Fatboy | Original Permalink

BETHESDA, Md., Aug. 6 /PRNewswire-USNewswire/ — The U.S. Senate last night passed the “Improving Access to Clinical Trials Act” (I-ACT), a bipartisan piece of legislation championed by the Cystic Fibrosis Foundation, its advocates and 120 other health…

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Syndicated From: The Unknown Cystic | Original Permalink

My stomach went south this morning. I felt better yesterday, bad today.

I spoke to my most excellent CF doctor in the morning and he said in a cool way like he was picking a…

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