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Isabel Stenzel Byrnes serves on the OPTN/UNOS Patient Affairs Committee and often writes for the UNOS bi-monthly UPDATE from the perspective of a patient and advocate. In the January/February 2011 edition of UPDATE, she reflects on what it was like to receive official notification that she was listed for a double lung transplant.
She writes, “The letter was my only tangible reminder of all the administrative and biomedical hurdles I’d gone through. It was proof that I was listed, and the stars were aligned to save me.”