Saturday, 08 August 2009 22:03VX-770 Giant Step Forward, says Seattle Researcher Bonnie RamseyPosted by rim50@aol.com
A story in today’s Xconomy features an interview with researcher Bonnie W. Ramsey, M.D. who has devoted her career to the study of cystic fibrosis.
Ramsey says VX-770, an oral therapy in development by Vertex Pharmaceuticals, has...
Thursday, 16 July 2009 16:54Victor RoggliPosted by rim50@aol.com
“Never give up.”
I was born in Winchester, TN in the spring of 1951. As a child, I had trouble gaining weight and was often in poor health—fighting off bouts of pneumonia. It was not until 1963,...
Thursday, 16 July 2009 11:05Paul DruryPosted by rim50@aol.com
“Live in the now.”
Born in Chesire, Connecticut with five older brothers and sisters, I was diagnosed with CF at the age of 2. Growing up, I had a normal, active, childhood with the “usual” cleanouts—playing...
Tuesday, 14 July 2009 14:46Cris DopherPosted by rim50@aol.com
“Keep moving forward.”
At four years old, I was diagnosed with cystic fibrosis. With my boyish good looks and southern California residency, I was chosen to be the poster child for the San Diego chapter of the...
Tuesday, 14 July 2009 13:52Life After a TransplantPosted by rim50@aol.com
Vincent Gregoire no longer takes the lift when he enters tall buildings. Two years after his transplant operation in Quebec, he now has a lung capacity of 103 per cent 3 per cent more than normal...
Tuesday, 14 July 2009 12:17Jennifer AlawadiPosted by rim50@aol.com
“You come to love not by finding the perfect person, but by seeing an imperfect person, perfectly.” Sam Keen
I first met my husband, Mohammad over the internet in 2003. We spent long hours chatting, both...