Yearly Archives: 2009
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Tuesday, 06 October 2009 19:59
Reflections on The Green Ribbon Festival 10/4/09
Posted by Ana
—10/4/09
Actually, I don’t even know what day it is. All I know is what event I have planned today and where I have to be and when. I am floating like in a dream, here in...
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Tuesday, 06 October 2009 18:20
Robin’s Trip Diary: Reflections of a CF Mom “4″
Posted by Robin
(I am Robin Modlin, a friend of Ana, Isa and Andrew for almost 20 years. I was invited to go on this trip to Japan to support my friends in their endeavor to raise awareness about...
- Tuesday, 06 October 2009 13:29 NIH Announces Expansion of Rare Diseases Clinical Research Network Posted by rim50@aol.com The National Institutes of Health announced today a second phase of the Rare Diseases Clinical Research Network (RDCRN) including funds for 19 research consortia. The Rare Diseases Clinical Research Consortia and a Data Management Coordinating Center...
- Monday, 05 October 2009 19:25 Promo for Mitsutoshi Ambe CF Charity Concert in Sendai Posted by thepoweroftwomovie Promo for Mitsutoshi Ambe CF Charity Concert in Sendai Here's a promo for a charity concert in Sendai, Japan featuring Mitsutoshi Ambe on October 8th. The concert will take place at Miyagi Women's University. Ana and Isa...
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Monday, 05 October 2009 19:15
Robin’s Trip Diary: Reflections of a CF Mom “3″
Posted by Robin
(I am Robin Modlin, a friend of Ana, Isa and Andrew for almost 20 years. I was invited to go on this trip to Japan to support my friends in their endeavor to raise awareness about...
- Monday, 05 October 2009 16:45 Validating Dietary Intake with Biochemical Markers Posted by rim50@aol.com Poor nutritional status is common in patients with cystic fibrosis (CF). The North American Cystic Fibrosis Foundation (CFF) has established a goal for all children with CF to be at or above the 50th percentile for...